California babies born with rare genetic disease

Transparent world+ demon slayer mark

Beautiful boys.

Its not fair for them

She knew jscreen existed. Almost all of us jews know since 90%of the common uncommon disorders if u will happen to us predominantly and even if she didn't the minute her genetic counselor if she even bothered to go to one, found out she was Jewish the test would have been immediately. Btw I know someone who was 16 w/this

Ashkenazi... that explains it all. The gene therapy treatment costs about 5 million dollars.

Lol

My Huntington’s Disease story begins like most people in the HD community. With a family history. about a year ago I was diagnosed with having the defective Huntington’s gene. Yes, it is hard - and some days are much harder than others - but there are many positive noises coming from the Huntington’s experts about new research and treatments and that fills me with real hope. Have a look into gene silencing, it’s like something out of a science fiction movie, but it could be ground breaking! It was obviously gutting to have my fears confirmed but I at least know what I am up against and I know that it’s unlikely I’ll experience symptoms earlier due to having a similar CAG count. (A CAG count.
Huntington's Disease is a devastatingly aggressing disease, I have known that neurological disorders were aggressive. As I learnt more about Huntington’s I wanted to do something positive in what was a negative situation. I know it’s hard at times but you should try not to focus on the negatives. Try to turn them into positives. I am hopeful that a cure will be found as science is really doing all they can. We took part in a research project which involves a two day trip to Florida to the Huntington’s Disease Centre, We were opportunity to meet with Dr odia, A highly recommend herbalism with scientific medicine. There are lot to say about Dr Odia, I really want to thank God that this man was used to end my sorrow, All my pains and tears turn to joy from the day I came in contact with Dr Odia, We were educated more about the use of herbs and few purchase the herbs which I used for two month and three week's. To my greatness surprise it did work out for me. There is no need for anyone to have a date stamped on their forehead when they’re diagnosed with Huntington’s Disease. I would encourage anyone to seek a second opinion especially if they’ve been told there’s no hope. It’s also crucial to learn as much as you can about your diagnosis. Seek options. Find out about what’s out there that could help. Contact Dr Odia via( Dr Odia Herbalist Home on Facebook).

I can't help but think of Natalie Merchant's song "Wonder", which was inspired by a pair of twins with a genetic disorder.

Mobile phone right next to baby, most parents refuse to protect their children's health until something goes wrong.

Ok

J wish you end your babies evriyhing good gad bless your family

this is creepy

🙏🙏🙏🙏🙏🙏

Experimental treatments should be free

Any updates? My son was recently diagnosed with this.

It's hard to imagine how hard this would be. Pray for miracles, everybody.

Be strong guys-parents !

Poor babies!