A Rheumatologist Explains: Sjogren's Syndrome

Excellent presentation - thank you!

How to get appointment with you please ? I live in the UK .

I was diagnose with sjrogen ssa, bit have syntoms sometime like myastinia gravis, but bloid text neg. Does sjrogen could be in in a group with mtastinia gravis?

I got negative results for both SSA and SSB, but I seem like having dry eye and dry mouth. Do you recommend me to take the labial gland biopsy test to confirm if I’m actually have sjogren? In order to do this test, should I schedule a rheumatologist?

Even with the diagnosis..doctors just say put in eye drops drink water and take otc forpain. Its considred mile and docs do t take it seriously.

Thank you so very much for this information, I have lupus and Fibromyalgia. Now my dentist told me I have dry mouth I was shocked, because I didn't think that could be noticed. I also have like mucus it feels in my eyes that I have to rub my eyes tell they clear up so I can see. I had no clue about Sjogrens Disease. But after I saw your video I see now I need to make appts A. S. A. P
Once again thank you so much for the information. 🙂

I was diagnosed with Sjogren’s and have started to feel the symptoms more now that I’m 71. I have a swollen tear duct in my right eye, skin rash, arthritis, neuropathy in my feet and hands, acid reflux, cough, dry mouth, Raynaud’s Syndrome, and fatigue. I get skin abscesses on my inner thigh once in a while. Chronic depression kind of goes along with it. What’s amazing is I look perfectly healthy. Kathleen A.

Thank you for the clear explanation!

Best video I've seen in awhile! Thank you for all of this valuable information!

I was told recently by my dermatologist I may have lupus so what. My research tells me AHA shows up on alot of blood work. I have enough problems I am not going to own a made up disease.

Where do you practice please?

jUST been told I have this and fibro Thank you for this information

Thank you!!! I wondered why why do i go.. always ok.. well why? Thats proceedure. Thats not an answer!!
Now 20 years later.. i know why!! Thank you doctor!!! I will now find a new

I was diagnosed with SLE; but my ANA is negative. I was also diagnosed with RA. I do have severe dry mouth, dentist said don’t even need suction because my mouth is so dry. When getting eye exam I was told I have dry eyes. I have severe sensitivity to light and sun sensitivity, I have a red flushing on my face. The sun gives me eye floaters and migraines too. I drink a gallon of water daily and I’m still thirsty! I use Biotene toothpaste and use humidifier because my lips are dry, racked and bleed. I also have axillary masses.

I've had such horrible dry eyes and dry mouth for years that my vision is gone and my teeth are in terrible shape I need dental surgeries. I've also had the tell tale butter fly rash, joint pain, debilitating fatigue, etc all my life since I was a teen. My eye doctor in NV suspected Sjogren's and I have not been able to find a doctor since moving back to the Midwest who will run the tests or take me seriously. I wish more doctors were as passionate as Dr. Elizabeth! Thank you doctor for the wonderful, informative video!

Thanks for explaining the risk of lymphomas. I wondered why my rheumatologist always checks my glands!

Are there bladder issues w/ this disease?. I've had over active bladder for 30 yrs, all else falls into Sjogrens. Thanks.

Can SS be the culprit for my cranial nerve 3 and 4 paralysis in left eye?

Can you get lumps under the skin like a swelling in Sjögren’s syndrome?

Rheumatologist said i don't have sjogrens syndrome but eye dr said i have all the symptoms. Not sure what kind of dr i should see next or should i see a different rheumatologist? Should i see an ENT? I'm being thrown around from dr to dr for the last 3 years .

I have Sjogrens Syndrome and my Dentist is the first to recognize it. My Rheumatologist confirmed the Sjogrens and also Psoriatic Arthritis. I also have Reynauds and now Autoimmune Hepatitis. I hope I add no more autoimmune diseases. The problem began when my mother who was supposed to be in hospice had sever pain with her heart and being and ICU nurse who handled pain,knew it would be simple to treat. She continued in pain until midafternoon and died early the next morning. My illness began in about ten days.

You forgot to mention vaginal dryness as well as eye and saliva. I only ever received the Sjogren's diagnosis, but after a day's worth of testing at Johns Hopkins, it as suggested that I might have Sjogrens. My primary care doctor gave me nose drops which help dramatically for the dry itchy eyes.
WHY WHY WHY won't doctors give me prednisone which is a miracle drug and combats ALL my joint pain????

Great video! Planet Ayurveda's Amalaki Rasyan helps to treat dryness and enhance the immune system.

I have a strong positive ANA (but no pattern some how) low c3, low c4, low lymphocytes count always and positive anti ss-b. They have diagnosed me with PA first then AS and seronegative RA. I truly feel like its SLE ans SS due to my symptoms (joint pain, fatigue,temperature 99.9 to 101 during flare, muscle weakness, rash all over trunk and legs ( doc said livido recticalis / or vasculitis), swollen mandibular gland, planter fascitis, Braydicardia and tachycardia whith flare up, under arm pits dry mouth and dental decay . I'm currently on Hydroxychloroquine and back on this infusion Simponia Aria and only on the second one this time around and i feel terrible. Praying it gets better...cause something has to give!

I live in upstate NY No doctor has diagnosed me. I keep getting told that it’s not their specialty 😢

So what is the best treatment for Sjogrens?

I have had autoimmune diseases for over 2 decades and they keep multiplying? Why? Thank you.

My wife has Sjogren's. The most relief from her dry eyes has come from Scleral contact lens. They are custom made to fit your eye balls and they hold fluid to reduce the dryness. They are very expensive, about $1,000 per lens, but if you are in pain from dry eyes, they are well worth the money. They must be fitted by a specialist. It takes about 3 or 4 pairs to get the fit right- hence the high cost.

I am not only happy am alive but also glad that "DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease 🤢🤢🤢and Parkinson disease(PD) with their herbal treatment.

I had Sjogrens sindrome from childhood, started haring lupus simptome sinne aged 30. Had miscarraiges, started shanking at age of 30
I am now 80, and manage.the diseases quite well, leading a normal life

My joint pains are very painful, it gets swollen, purple and red veins in ankle and my knees, I have allot of weakness

Starting music from Indian song "tera chehra jub nzr aae " ...

I’ve been diagnosed with fibromyalgia and Sjogren’s disease. This video explains why my rheumatologist does a blood test every 4-6 months and other valuable information. Thank you.

Eye Balls ! 👁️👁️

I've had all these symptoms and the possibility didn't even come up with my doctors. What prompts them to make a diagnosis or at least test for it? I had parotiditis on two separate occasions and constantly feel like my eyes are dry and itchy and I'm thirsty. My WBC count is usually on the lower side and it has been steadily increasing over the last year. I haven't been sick. I run, so I get sore (especially in the hips). My doctors brush off any pain or other things I have to being a runner. I feel it's a huge bias. I'm fatigues more than normal and get numb hands, etc. They just say it's running. There an anti-athletic bias in the medical field. If you exercise, everything that happens to you is because of that. 🙄

Here in the UK very different, I have been having positive ANA or the last 8 years, no diagnosis yet, despite all symptoms of Lupus and sjogrens, I have been deteriorating for the last 3 years, now struggling to walk, rheumatoid specialists don’t have an answer.

Can you re-record this please?

The sound is terrible

I have Sjogrens and chronic lyme

Very helpful, thank you!

Say doctor, your microphone has an echo. Ya'll can really improve that with a plug in jobbie. Thanks for your video.

We need good Rheumotologists. I am on my third one and at the point where I don’t even bring up issues because they don’t think my chronic pain , fatigue and nerve symptoms are related to my Sjogrens diagnosis. The latest doctor if my blood work is fine dismisses my concerns and states it is fibromyalgia. I haven’t had a pain free day in more than a decade. Thankfully the pain is low to moderate but daily pain wears you down. I think the bigger reason patients avoid the Rheumotologist is their concerns are dismissed.

Should someone with Sjogrens take Plaquenil?? Plasmoquine in my country.

I have Sjögren’s since 2007. My first diagnosis was fibromyalgia in 1997. I did not have problems with eyes and salivary glands until later. I presented to my Rheumatologist because I would get low grade fever and uncontrollable chills. It was many years before salivary glands and eye dryness came about. The fatigue is unbearable. The dry eye is almost too much to deal with, but have found l “Low level light therapy” that works quite well.

Has anyone ever experienced these symptoms with Sjogren's flare-up? Lymph nodes and throat become so painful that it becomes harder to swallow or speak. Gums are swollen and my tongue hurts sooo much that it's unbelievable. Don't even dare to move it, lasts for day. When it first starts my lymph nodes hurts and I feel unwell, almost like the beginning of a cold. Then suddenly everything hurts all at once! Has anyone experienced this?

Very helpful information! Thank you.

This can work the other way - from cancer to auto-immune deregulation. Thanks for your clarity, and factual insights.

I have rheumatoid arthritis & sjrogrens & hypothyroid..fun

The sound is not too good. Interesting Though.

I have primary Sjogren's Syndrome and have a wide range of symptoms of both Rheumatoid and Lupus plus I have had some seizures. I was diagnosed due to a positive antibody test result on a lip biopsy. The hair loss and thinning has bothered me the most, emotionally. Now my knee joints are so enlarged and painful I can only walk a short distance. I feel uncomfortable emotionally wearing fitted pants. I am 75 and was able to live an active life in spite of the disease for many years. Only in the last 5 years has the disease started to progress. I believe that sudden progression has been due to several injuries that resulted in orthopedic surgical procedures. Throughout the years the main frustration I have had to endure is OTHER PEOPLE WHO DID NOT BELIEVE I WAS ILL. It has grieved me tremendously the ignorance of scores of people I have had to endure. Medical personnel would argue that I was healthy based only what they thought healthy "looked" like. My symptoms were ignored, referrals I asked my primary care doctor for were refused, a handicapped tag for my car was refused me when I was in so much pain I could hardly walk. I was having kidney failure and was refused a referral to a kidney specialist. If the problem was with just one doctor I would just find another doctor and move on but, it seems to be every primary care doctor I have ever dealt with. I know doctors will put false things in your medical records that will follow you for the rest of your life.

I was diagnosed with lupus SLE over 20 years ago. I was having flare ups that would last for weeks and I could go for months in remission. I now take steroids daily and haven't had a flare up for years but appear to be left with fibromyalgia and extreme tiredness. Over the last few days I have come across Sjogrens and now wonder if I have that. Over the years I have had problems with my parotid gland. Sometimes it swells up with no pain and other times it swells and the pain is so bad I can hardly open my mouth and eating is difficult. This can last for a few hours or a few days. Also last year I had terrible eye irritation and had to visit my optician who suggested eye drops as my eyes were dry. I would never have thought there could be a connection between these things.