Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders

Excellent presentation.

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Thank you the comprehensive presentation

I have allergic asthma and allergic rhinitis when you have this you suffer

Very, very good presentation! Very informative and helpful. Thank you. 👍🏼

I suspect I have hereditary alpha tryptasemia. I have hEDS, POTS and MCAS and the H1 and H2 blockers I am on help a bit, but they are just keeping symptoms at bay rather than preventing reactions. My tryptase was 11.5, then 13.5, and now is 14.5 as of a couple months ago. Reactions are occurring more and more by the day.

It is just terrific that the vaccine with Sars in it is activating Mast Cell Syndrome in people after the jab. This is the new reason why death by Pfizer is occurring so the latest news is saying.

AAG is not Autoimmune POTS actually. There is some crossover in symptoms but most dysautonomia have crossover

Trying to find long covid info here.

This is incredible! great presentation! Is there some way to print this powerpoint without having to screenshot these frames?

Great video, thanks for sharing 👍🏻

hey dr peter, i lost my ileocaclevalve. am struggeling with food allergies. do you think i have some of mastcell dissorder? I have permanent sibo due no valve.

I was diagnosed after a bone marrow biopsy a few years ago. I have been on Rydapt therapy for nearly 2 years now.

Good to see the NASL sound guy is still getting work.

What about patients with Lyme?

Please keep us informed of any new research and findings that come out. I will send the info to my doctor. I have the one specialist in my state who knows anything about this but I'm sure he can always use new information, as he is in clinical practice so I don't know how much he goes to medical conferences or reads journals. I'm subscribing to your channel and clicked the notification bell.

I'm glad to hear that there's research being done to come up with targeted medications rather than treating it symptomatically. I have become rather underwhelmed with the symptomatic approach; 1) because I react to certain types of drugs. and 2) I really feel that the long-term effects aside from what they're being used for might hamper some body functions and add insult to injury. I cannot tolerate Proton Pump inhibitors, for instance, as they actually GIVE me projectile acid reflux (a paradoxical reaction) but I also realize that the reduction in stomach acid long-term isn't good for you because if there are gut-related issues that affect proper digestion you really don't want food sitting in your stomach and your body to develop further gut problems related to that or habituation and rebound when you come off of it. For respiratory symptoms I have had rage reactions to steroids either inhaled or oral.

I walk a thin line between being under-treated on a single antihistamine and intermittent breakthrough symptoms (if I miss even one dose I'm in terrible shape), and stabilization. Things are up and down depending upon which day or week it happens to be. Now I am having breakthrough symptoms with skin, respiratory, and some intermittent digestive stuff and a new group of symptoms in my chest with congestion in my lungs, coughing and squeaking. My dysautonomia has started to act up again after awhile being pretty stable. I cannot tolerate much exertion at all and the other day when I was up too long I almost passed out after taking a shower and then going into the kitchen to do a few things.

Sorry to hear that Canada is limiting tests that you can run. That's never good. All the tools you can use, the better picture you can get of what's going on in the body. It seems to me that national healthcare should strive to cover more, not less, to truly be universal coverage. We need a system here in the US, but not one that cuts out useful tests.

👏

Any link between MCAs and high cholesterol. My cholesterol is not explainable but it tracks my symptoms- when I am symptomatic my cholesterol is higher- I normally test when unwell

Is granuloma annulare a MCA?

Thank you!

Rituximab for POTS? Has anyone taken this?

Turn the treble down!!!!

Maybe it’s because I spent so much time in schools teaching, but when he said “hands up if you can’t hear” my arm went up 😂 I didn’t think to just turn the volume up. Since it was down because of the piercing noise.
My arm wanted to go up quickly, but those of us with EDS know by bedtime our bodies have done for the day, including arms!

anyone here on dupixent for their mcas ? how is it working.
Or JaK or Kit inhibitors

You are an expert in your field but not in English grammar. It is "different from" or "different to" but NEVER "different than".

I have CML and HS on addition to this. Could I also have EDS? My ligaments have been accumulating calcium since my first leg xrays at 15. At 41, I dislocate my knees and hips multiple times a week. My thumbs multiple times a day.

I wish this video was 6 hours longer than it is. I’m taking this to my doctor

For chronic autoimmune urticaria that is refractory to omalizumab, we do trial immunomodulators with varying benefit.

Thank you for this indepth explanation of MCAS.

Do you any doctors knowledgeable in EDS in Atlantic Canada (better if New Brunswick)?

I finally got my EDS diagnosis. I seem to have a lot of weird allergies that I'm thinking might actually be MCAS, not allergies. Not sure. Need a doctor who knows enough about it to be able to tell for certain.

I have been absolutely miserable for so many years, because of everything going on with my body and being gaslit at hospitals for years being told that it's all in my head. Now that I have a diagnosis, it's such a relief, because at least my pain can finally be validated.

Now, I would REALLY like to have treatment options that could help me regain some quality of life, but my doctor knows no EDS specialists who might be able to help.

This is the most thorough lecture on Mastocytosis and MCAS that I I have come across. Thank you so much

I feel so seen right now❤❤❤

I believe LC is part of a mast cell activation.

An update in links between coronavirus spike proteins, MCAS and the long covid pandemic is needed.

Thank you, doctor!!

Your presentation was fabulous! I’ve been diagnosed with EDS, MCAS, low immunoglobulins and am so sick all the time (8 out of 10 months ). Saddest part my “MCAS doc is supposedly an expert” 😢
I need a knowledgeable doc in the USA who takes insurance, not a functional provider, too expensive. Any suggestions are appreciated.

The one thing that all EDS recordings and presentation have in common is terribly poor audio, even up to international level conferences with major speakers giving vital information. It’s very disappointing.

2019 when this was posted and we still cant make a PA system with a microphone that doesn't feedback.

Thank you so much for helping me understand what is happening in my own body. Most Doctors have not even heard about it and it can be incredibly frustrating. This helps a lot.

I have symptoms that I can only characterize as "aquagenic pruritis" Can you plz link that and "mast cell activation"? I think that there is a correlation there but I am having a hard time finding any research about it/

Wow. If pots and eds are autoimme, and we could start treating the cause instead of symptoms, maybe I wish get better

Miller Donna Walker Donald Moore Mark

The ministry of health doesn’t let doctors do their jobs and order the blood tests that they need to treat their patients? Isn’t that criminal?😮